UKLCC develops toolkits for MPs to support improvements in the local lung cancer services

Lung cancer is the second most common cancer in the UK, with over 41,000 new cases diagnosed in 2009 alone, and it remains the most common cause of cancer death in the UK with almost 35,000 deaths from lung cancer in 20101

Despite positive steps to improve cancer services, outcomes for lung cancer patients living in the UK are still worse than in comparable countries2.  For example, only around a third of lung cancer patients will be alive one year after they are diagnosed with the disease, falling to less than ten per cent five years after diagnosis3.   

At a time when the NHS is adapting to significant structural reforms, the UK Lung Cancer Coalition (UKLCC) is calling on national policy-makers and local NHS organisations to remain focused on improving the quality of care available to lung cancer patients.  Data from national surveys have revealed clear variations in the quality of lung cancer services across England.  Specifically, performance currently falls short in the following areas:

  • The quality of written information available to lung cancer patients about their condition
  • How effectively hospital and community staff work together to deliver care
  • The availability of specialists nurses
  • The provision of a personalised written care plan

To help identify and address local priorities for improvement, we have developed localtoolkit to give MPs the relevant data and resources to enable them to engage with local NHS organisations in their area.  This toolkit consists of the following materials:

  • A briefing on the performance of lung cancer services in their area
  • Template letters for use with local commissioners and providers including some key questions for them
  • Recommendations on the steps that local services can consider taking to improve outcomes in their area
  • A template press release for use with local media to highlight their support for improvements in outcomes for lung cancer patients

We are encouraging MPs to use these resources to find out what steps local organisations responsible for planning and delivering lung cancer services in their area are taking to improve the quality of care available to lung cancer patients.  Even in the best performing areas there is still more that can be done to improve treatment, care and support for lung cancer patients and their families. 

Toolkits have been developed for each cancer network:

If you have any questions regarding the information on services in any of these areas, please contact the UKLCC on This email address is being protected from spambots. You need JavaScript enabled to view it..

References

1Prof MP Coleman et al, “Cancer survival in Australia, Canada, Denmark, Norway, Sweden, and the UK, 1995—2007 (the International Cancer Benchmarking Partnership): an analysis of population-based cancer registry data” The Lancet, Volume 377, Issue 9760, pages 127 to 138

2Cancer Research UK, Lung cancer survival statistics, available at: http://www.cancerresearchuk.org/cancer-info/cancerstats/types/lung/survival/accessed 5 August 2013

3Cancer Research UK, Lung cancer Key Facts, 2013.  Available at: http://www.cancerresearchuk.org/cancer-info/cancerstats/keyfacts/lung-cancer/cancerstats-key-facts-on-lung-cancer-and-smokingaccessed 5 August 2013

UKLCC Secretariat, c/o Red Hot Irons Ltd info@uklcc.org Telephone: 01675 477 605 Facsimile: 0121 336 1914